The 20th day of April has been designated as worldwide “Sarcoidosis Awareness Day” to call attention to Sarcoidosis. This disease affects many Americans and countless others around the world, and is a very important global public health concern.
Gospel star Ricky Dillard is amoung the latest to share his diagnosis of the disease, but thousands more are affected and may not know the symptoms.
Sarcoidosis is a systemic disease that can affect multiple organs, create a variety of symptoms, occur chronically and cause blindness, debilitation or even death. The exact cause of Sarcoidosis is unknown, but it is characterized by the formation of cells that can inflict serious damage on organs, resulting in scarring, weakness, reduced function, and nerve damage. In severe cases people with Sarcoidosis require organ transplants. While some treatments exist, there is currently no cure. (http://www.nhlbi.nih.gov/sarcoidosis)
The Bernie Mac Foundation for Sarcoidosis will join Emma Carroll, Founder and Executive Director, JSOF at the 9th Annual Sarcoidosis Awareness Walk for a Cure, April 20, 2013 at the JCC, 5601 S. Braeswood, Houston, TX 77096. “Bernie Mac”, beloved Actor and Comedian died of Sarcoidosis complications in 2008.
The American Sarcoidosis Association and Janine Sarcoidosis Outreach Foundation join millions around the world to observe Sarcoidosis Awareness Month promoting more research into a cause and cure. Emma Carroll founded Janine’s Sarcoidosis Outreach Foundation in 2003. Mrs. Carroll’s daughter, Janine, was diagnosed with Sarcoidosis, with one of its most serious complications, “Pulmonary Hypertension” on February 15, 2002 and lost her battle with Sarcoidosis 9 days later. The mission of the organization is to empower the community through outreach and education and raise the awareness of the disease.
MS Carroll is quoted as saying, “Our goal is to have all 50 states, other countries and communities recognize April as Sarcoidosis Awareness month and designated as such throughout with planned events.” “Sarcoidosis Awareness activities includes asking all on April 20th to wear purple and white, the nationally recognized colors for Sarcoidosis Awareness”, said MS Carroll, “People with Sarcoidosis remain a medically underserved population in every country,” “This day will bring together patients and families around the globe who are dealing with the very challenging issues associated with Sarcoidosis.”, said MS Carroll.
Emma Carroll/ 832-248-6621 – PO Box 1008 – Houston, TX 77411